You may or may not know I married a man with disabilities. My husband, Neil has a form of muscular atrophy known as Charcot Marie-Tooth (CMT.) He also has chronic kidney disease and is currently in kidney failure, receiving dialysis, and awaiting a transplant.
In this episode of Just Us For Y’All, we discuss what it is like in our marriage, one of us having a disability and the other one being a caregiver. It’s not always easy, and sometimes it takes creativity and sacrifice on our parts, but we make it work because we love each other.
I also deal with a lot of fear about my husband’s health and the probability that he could die before we reach our golden years, but it’s a reminder of how precious time and life are, and how it’s important to make the most of both.
You can listen to our discussion in the link below or wherever you listen to your podcast. Our handle is Just Us For Y’All.
Once again you will have to put up with my obnoxious laughter, because even though this episode is somewhat heavy, Neil always finds a way to make me laugh, it’s one of the things I love most about him, not that my love has boundaries or reasons, but it’s a trait I find admirable.
I hope you enjoy listening!
Love & life lessons,
Kristian
Life Lessons From Around the Dinner Table 
thank you for sharing!
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Thank you for reading. And listening!
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my pleasure…
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I loved this episode. Thank you for sharing your stories – Both yours and Neil’s. I admire both of you! I’m already looking forward to the next episode. Your laughter is contagious.
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I’m so glad you liked it! It was very real. I was on the verge of tears a couple of times but managed to compose myself. I am so excited for our next episode. And thank you, I’m self conscious about my laugh, but I’m sure that will fade with time. I don’t know why, people always tell me they love my laugh, but I find it obnoxious, maybe because I can never seem to control it. I get on a roll and can’t stop. 😂🤣 I’m sure that will happen at some point.
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Very well done both of you! His voice level seemed low at the beginning, but was much clearer in the last five minutes. You handled a delicate subject with honesty and humor. Need more of your laughing. Great start and I look forward to your next podcast. I will be doing some research today on “ranger wolves” that are now my next big fear in the woods! 😁❤
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Thank you. Yeah, he accidentally hit the gain button at the end. I think we’re getting the hang of the sound. I sounded much further away in the pilot episode, but I was clear in this one. It’s hard because I am much more soft spoken. I am sure there will be episodes where I cannot control my laughter. Bahaha!!!! I don’t think you need to worry about “ranger wolves or wolf rangers.” 🤣😂🤣😂🤣 Thank you so much for listening! ❤❤ I’m proud of myself for not crying, I almost broke down a couple of times, but I managed to keep it together.
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You both did a great job of handling the emotions that must arise. I did not feel like we lost you to the emotions of the moments at any point. But that is why they have a pause button. It is okay if things get to you once in awhile, nobody expects you to be the silent, dutiful soldier through all this. Of course, being overly emotional to the point where you cannot express yourself clearly won’t be a benefit, but it is not required to be devoid of all emotions. All in all, a great job with a difficult subject. Really enjoyed listening!
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Thank you! I hadn’t relived those moments of watching 3 people I love suffer, 3 different hospitals, 2 different states, 3 different cities, all of them relying on me to bring changes of clothes, food, pick up prescriptions, not to mention keep up with 2 households, & not have a complete & total meltdown & find time for myself to eat. I think I’m still in shock that I managed to come out of that with most of my sanity. I know it’s okay to cry. I do it a lot, and I know we can edit, but if a time comes when my voice cracks and the tears slip, I know it’s also okay to be heard, but it doesn’t mean I have to like it. Lol. As much as I cry & as sensitive as I am, I still don’t like crying in public, I think I just don’t like to be fussed over. People are so used to me being the strong one, it throws them off when they see me cry, and then it becomes this big thing, & I know people mean well, but the hugs & questions often make it worse. Anyway, I’m rambling. I’m really glad you enjoyed listening! Thank you, again. Your support means the world to me!! ❤
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